So you’re getting shrimps for Christmas. Whether you are a beginner or trying out a new variety here are some links to popular articles from my blog Starting with Shrimps. (Around 60 articles all together)
So I grew up with a Vic 20, C64 and Amiga. If you’re around 40 you’ll know that this meant repetitive strain injury waggling the joystick like crazy to make Daley Thompson run for gold. Several joysticks later ….
Back in those days, you used a few basic keyboard buttons or a simple joystick (up, down, left, right and ‘fire’).
I had a go at Gameboy games in my teens – a whole 6 buttons to control and played the odd game on the original Nintendo – which was around 8ish? That’s where my experiences ended. I went to Uni and games were pretty much not on my todo list.
Recently I started playing games again. Sims3 interested me so I played a lot of that – point and click, I could cope with that. 20 years later I look into it in more detail to see what I might like to play and OH MY GOODNESS. What the hell do all these buttons do? The screens gone all 3D, everything is trying to kill me, I don’t know which way I’m facing or which direction to go. Oh and now I’m dead. Start again.
I’m playing games on Steam, watching lots of Ginx TV and YouTube. I haven’t a clue what I’m doing but I’ve enjoyed what I’ve played so far. I feel accomplished just loading a game (nothing changes in that respect if you’ve experienced tape loading before).
I like survival games and crafting – oh yes I didn’t really know what crafting was, in fact, none of the ‘types of games’ meant anything. I had to learn what ‘Sandbox’ mode was and ‘Open World’ games. Some of the games had so many menus just to start them! In my day you just hit the space bar and away you went. Now you’ve got to memorise 20 keyboard commands, programme a games controller and learn a whole load of abbreviations.
It took me 4 hours to work out what RMB was. Right Mouse Button apparently. It’s a whole new language.
So, now I’ve bought my first controller. I’ve gone for the Steam one because it is very programmable – and I will need that because I can’t use my fingers enough to press certain buttons. With this one I can just programme the buttons I can reach. I’m hoping it will be quite accessible.
This thing has about 22 buttons and a track pad. WHAT was I thinking! So far I managed to launch a game with it … but couldn’t figure out how to programme in my killer moves and ended up closing it before I even took a step forward. I need to do a lot of reading and fiddling to get the hang of this. On the plus side, I can press the buttons in most places and it looks cool on my desk. Wish me luck.
I was drawn to an article back on 2011 responding to a person who asked “Can we trust the message in the Gospels of Christianity”. They were concerned that the biblical events were written down quite some time after they occurred. The reader wanted to know if they are truthful / accurate having being passed on by word of mouth initially.
I am going to highlight two of the parallels.
It’s a cultural thing – we place heavy value on written works in the 21st century.
“Jesus never thought it important to scribble down a scroll of his greatest thoughts and leave them for posterity…. We live in a world where every leading thinker, teacher, politician … is in a desperate rush to record their views, insights and opinions for the benefit of the rest of humanity”. [Christianity Magazine: accessed 8 SEP 2010].
More often than not I was asked, as a social work educator/lecturer, to read and soak up every Green Paper, White Paper, policy document, book, journal article, news story / media article there was and condense it into a training session ‘to inform staff of the most important parts’ on some topic to do with social care.
I was asked to condense everything there is to know about Direct Payments or personal budgets into a few hours training time and spit out fully confident and knowledgable staff ready to convert those that live in the sin of dependency!
Social work students are told to read, read and read …. then listen, listen and listen again to lectures. Yes, placements occur – but they come with the burden of a whole stream of documentation and ‘writing it up’ or examining people on a well written essay. Those who are qualified are over burdened with forms and reports – spending less and less time actually visiting and getting to know and understand a clients situation.
We read and write ourselves to death. We Tweet, we blog, we Scope, we update our status and we think we are doing humanity a favour. We like to display our knowledge – our power. We like to think we are important and the more people who follow our blogs the more it boosts our ego? The more reTweets we get, followers whom we gather the more we show that we rub shoulders with the best? Is this networking or merely boosting our ego over and over again. I’ve seen a lot of ‘I shared it first’ syndrome and so many blogs are just a regurgitation of the same old thing – within social care information its no different.
We need to share information and learn from the best – but does our use of communication risk dragging us down and making us less productive or useful than ever?
I would rather a social worker who can DO rather than one who makes notes of every detail beyond the call of duty. Unnecessary details. Did my care plan really need to document I had 4 guinea pigs? Apparently it did.
We all know ‘form’ syndrome is not helpful. I would rather an adult service manager who demonstrates their management abilities other than to spend all day writing more sets of instructions to follow. I’d rather they acted on what they knew – and didn’t just pride themselves in being able to quote great chunks of disability theory at some higher level. Name dropping Finkelstein or Beresford during every conversation is not helpful – and I’ve known quite a few managers who have done this in the past.
Be a follower
The ancient way was for followers to have a relationship with their rabbi (and fellow learners) to do just that – follow every footstep, observe every practice.
“They watched their rabbi’s every move, noting how he acted, thought, responded in every given situation. They worked passionately to incorporate his actions and attitudes, as well as his words, into their lives. A disciple’s deepest desire was to follow their rabbi so closely that they would start to think, and act, just like him.”
We can take a lot from this. Social workers do not appear to get paired up with someone who is a good teacher – someone who is passionate and can show them what doing a good job looks like. I saw new social workers who were being teamed up with others who were already tired and worn down to the ground. They barely had enough time to do their own work never mind support a new person. It’s that old expectation to hit the ground running – on your own.
Let’s look at personalisation, people have been given new jobs, new roles, new responsibilities and often a new place to work from (or working from the boot of a car). There is nobody to follow, learn from, observe because what they are being asked to do is like nothing they have ever done before. Social work and health care staff are left to rely on trying to fit in more reading or go to snapshot training events – and we wonder why personal budgets / health budgets are not happening for people.
Don’t just write about it – do it. There is no movement without ‘move’.
Christianity, like many other faiths, is a ‘living faith’. I always think it’s what you do on a daily basis that is important and not how many times you have read the Bible or been inside a Church. The way we live our lives is something that we can pass down to our children or be a role model for others – we are all teachers in that respect (for better or worse).
This passing down of knowledge, attitudes and behaviours is what occurred prior to the writing of the Gospels. The importance of passing down knowledge in many ways (song, dance, art, stories etc) can be found in many cultures whether it is how to prepare a ceremonial feast or skilling someone up to find food. You won’t find a twenty page policy on why the skill is needed, what the aim is, how to do it, who can do it, what not to do and a glossary of other notable texts to substantiate the document. What was important for a rabbi was:
“whether his apprentices had wrestled and engaged with his teaching on a personal level – did they really understand”. As opposed to whether they could recite chunks of text.
How true is that of social work? Many people recite the social model of disability but clearly have not understood it because of the resulting action or inaction? How many social work staff can recite ‘freedom, choice, control, flexibility, dignity’ in care yet fail on all accounts to make it a reality for disabled people?
It is all evidence that people have not successfully engaged with the ethos and practice of good social care. Staff are still refusing a disabled person who wants to spend their funding (personal budget) on going to a hairdresser – yet allow the same amount of money to be spent on a carer to wash the person’s hair at home because that is more ‘traditional’ or ‘familiar’. For those who can’t see their errors in thinking, throwing social care staff into a listen and learn environment or telling them to read something is not likely to work. They need to become a follower again. It’s uncomfortable, it strips you of your power – but it is needed. It is from this position that we build ourselves up just as the disciples did, to the point where we become the one who teachers the next generation and each other.
There are four great reasons to buy these hand crafted gift cards holders / money holders . I have over 30 unique designs for you to choose from plus many prints not in my shop. Come and take a look.
People tell they love them because …
1) They turn a gift card or voucher that is a standard design every one will have into a personalised surprise gift.
No one will guess an iTunes gift card is tucked away inside an envelope with their favourite giraffe print and hand woven button fastener. And afterwards they will have a lovely keepsake to use rather than a throw away piece of plastic they will never remember.
If Christmas and other special occasions are about memories and thoughtfulness then a personalised present is the perfect gift.
Whether it’s traditional winter prints, new baby prints, celebration floral or wedding patterns or sports designs, my selection of designer papers (heavy weight premium textured card form sustainable sources for many products) have something’s for everyone.
I also have thousands of prints not in my Etsy shop – on pretty much every possible theme so do enquire so I can make a present that’s right for you.
What else are people loving?
As well as for presenting a store gift card or voucher in a more personalised way, what about presents which haven’t arrived or don’t have a physical voucher to give?
What if your tickets are held at a venue and you have nothing physical to give?
More and more websites offer online vouchers – where you print off a code the recipient can redeem in an online store.
Perhaps the most impersonal gift is a home printout stuffed inside a shop bought card! Not any longer.
We provide a colour coordinated insert with every gift card holder for you to present the voucher code or write your own message e.g. ‘ tickets to see Phantom of the Opera to collect at the venue on ….’ .
These are perfect for gifting coins and notes.
One final use – the gift of time or promise
Some families like to use the insert to write their own gift of time or promise e.g. ‘ A family day out at the zoo’, ‘Gym membership starting in January.’, ‘A day out to watch [sporting event name].’
Each gift card holder plus insert ranges from £2-2.20 and are available from my Etsy fundraising shop
All profits to support adults living with Dystrophy in the U.K.
These cards are starting to go in my shop – and I’ll be making some in my Itsy Bitsy range of A7 cards very soon.
These pretty lantern cards are designed with an opaque middle layer, made from parchment. When a battery powered tea light is placed behind, they have a beautiful glow. I like to use a flickering warm orange style tea light so it looks like a flame and creates some movement.
Designs will include:
and can be pre ordered on OhHowLovelyGifts on Etsy UK.
*tea light not included.
Hello, I’m Louise and this year I wanted to show people that it’s still possible to create beautiful artwork with a progressive impairment like Muscular Dystrophy.
I have Limb Girdle 2C which is similar to Duchenne. My muscles have gradually lost their strength affecting almost every part of my body.
I’ve been crafting for for around 25 years and over this time I’ve had to adapt to losing the use of my body – but I’m still able to make hand crafted items.
Sometimes I have to shop around to buy products that are easier to use or decant media like glues and paints into different bottles. My grip is barely strong enough to hold a pen and I can’t bend my finger tips to pinch hold things well. I’ve got round this by using tweezers as prosthetic finger tips.
Other times I have to adopt a different method compared to someone with full hand use. Not being able to lift my arms up and moving my hands by crawling with my fingers across a surface, means I have to be very organised in my technique. e.g. Always painting an item or adding delicate details from the top down so I don’t drag my hands over these areas.
I work primarily in paper and mixed art media making dimensional greeting cards, pictures and gift card voucher / money holders.
These hand made items then go on sale in my Etsy UK shop (OhHowLovelyGifts) to raise funds for three charities that support adults living with MD. I’ve also set up a Facebook page to showcase my work and chat with buyers and crafters.
I get so much enjoyment from seeing them come together and the lovely comments from people who receive them. I work with my personal assistants who do a lot of the practical things for me. They find the materials (I point to photos of my materials kept on my phone), pass me items, open bottles and feed things through my cutting machine. Describing what I need is very tiring so it can take me many days to make a greeting card – often over a few weeks. It might be slow going but it’s incredibly rewarding for both of us.
When I lost the ability to breathe properly and started using a ventilator, the nose piece kept blowing my paper and art materials across the table! It’s funny the first time round but not when your working with fine powders!! My husband adapted it for me so it blows away from my work surface. Sometimes you have to think of ways around things – do things differently through invention and modification.
I would encourage anyone to have a go at paper crafting because of all the benefits it can bring. Creating art is good for the mind, gives a sense of accomplishment and is immensely enjoyable .
The three charities I’m supporting are:
- Muscular Dystrophy UK
- The Neuromuscular Centre
- DMD Pathfinders
Shrimp design gift card holder / money holder.
Available to purchase in the UK for £2.00 plus p&p from my shop. Show me this gift on Etsy. Please contact me to order packs for re-sale.
All profits go to raise funds for adults living with Muscular Dystrophy in the UK.
A luxury gift card or money holder with ribbon fastener. Hand painted, wooden shrimp embellishment. Heavy weight premium card. Includes one blank voucher insert of a matching colour.
Choose from: Red Cherry, Snowball, Blue Dream, Crystal Red Bee or Blue Panda Taiwan Bee.
Shown here on a wood background. Also available in sand, earth and leaves.
- presenting a purchased aquatic store gift card in a more personalised way.
Use the provided blank insert to …
- present a gift where you might only have an Internet gift voucher code and nothing physical to give.
- write your own personalised vouchers or coupons for friends/family to redeem. Eg ‘I will buy you a new shrimp tank of your choice’.
Ships in 1-2 weeks due to being hand made to order, first class.
Buy more than one and just pay one postage fee.
Last year I moved from being funded by the council to being funded by the NHS. I employ the same Personal Assistants, just the funding has changed. Most people who qualify for a Personal Health Budget (PHB) like this have to meet challenging criteria needing daily health care support. I’m a big fan of personalisation – probably why my working life was always in this field. If done right, with good information and support, it can really help people have a better quality of care and support. For many it can be life changing.
When I was told I had met the criteria I was asked if I wanted to take part in peer support or consultations about using PHBs. I’m all for participating in things to help more people use a PHB so I agreed to be a contact.
Early February I was contacted by Skills for Care to review their online information for people who employ Personal Assistants and use a health budget. For participating they would pay me £15 an hour for around two hours of ‘work’ spread out over about 3 weeks.
I immediately said I was interested.
and so followed:
- A 14 page participation policy
- A 3 page form to detail how I found the online information I would review (the ‘work’)
- A 4 page payment form to complete
- A warning that I needed to seek benefit advice as a fee would be involved.
- If I participate I become an Advisory Group Member.
- A note to go to the HMRC website and fill out a employee checklist for tax and NI.
On that note, considering I am in receipt of benefits because I can’t work and all I wanted to do was provide a review of their PA resources, I’m out.
How can people participate when faced with all this. It’s too much. Too exhausting.
If I do the above I could be viewed as looking to take up employment – I’m not, I just wanted to review a website over a period and time I am able to. People on benefits can receive participation fees, as long as it’s not a long term thing that would indicate they could work. All of the above might suggest I am working. I’m not taking a chance on that.
Archived from my previous blog.
I have picked this Untold story to share. T4 is well documented – yet this programme designed specifically for the killing of thousands of disabled babies, infants and adults during the WWII is often untold or forgotten.
It is about those disabled people that were taken by bus into a beautiful historical building in Hadamar, Germany. It was a hospital. A place built to ‘care for the welfare of people’. Disabled people were thought to be incapable of productive work (i.e. hard work) and this was the message given to the public in the papers and on film. Work incapable disabled people were one of the first to go. The treatment was the same for others with impairments, for this place was a euthanasia centre.
” … make a clear promise to speak out against discrimination which judges some lives to be of less value than others today.”
Last year I went to Liberty Park in Overloon, Holland.
How far will we go to keep or win back our freedom?
It is here where visitors can look around the National War and Resistance Museum and Marshall Museum. The park, the site of one of the heaviest tank battles, has a message – one that is relevant to each one of us today – freedom cannot be taken for granted. It invites us to think about war and oppression. How far will we go to keep or win back our freedom? It was hard to make it into the door without choking up.
I wondered about my own freedom and how much my life is valued?
As I write this I ponder over the current budget cuts that take away the liberating welfare support or health care disabled people rely on to survive. In the UK it seems society values us less than ever before. Oppression and injustice is never far away. Whatever format it takes – it still damages lives and takes lives.
I read the exhibits, I looked at the photos of death, destruction, fear, hope and survival. I sat in the quiet, reflective memorial room. Where are the disabled people of Holland and elsewhere who were tortured and gassed, who is telling their story? How many people have sat in this place and remembered our forgotten people?
On the way round we saw the graphic images and videos of genocide to present day. In Overloon they are not afraid to show it as it is. It’s not for the faint hearted but worse not to look.
Life size photographs of children in their mother’s arms – both slumped on the street, dead from gas attacks in recent wars. The video of survivors with skin blown of their bodies getting help in the years after the Atomic bomb dropped on Nagasaki. These are the images that stick in our minds, that make us tearful.
However, much injustice is out of sight. Travelling around Holland, looking at pretty houses and out onto fields of flowers and parkland it is hard to imagine the stories that unfolded in those very buildings and fields. It is a reminder that injustice and denial of freedoms and liberty is often disguised, going on unnoticed for far to long, in front of our eyes.
Sometimes we open our eyes and see it happening – yet people do nothing. People knew what happened in that hospital – few spoke out and fewer still did anything about it.
Do you speak out against inequality and discrimination against others?
Injustice is part of my history as a disabled person – and relevant to my life today.
It is relevant to all of us today.