Return of the Borg

My blog post for Blogging Against Disablism 2013 is on line.

Return of the Borg

Exploring the amalgamation of woman and machine.

20130430-212851.jpg

Advertisements

Product reviews – now on my formal blog

Reviews of ‘disability’ products I have tried or products that I’ve used to aim to solve a particular difficulty.

All reviews are my own opinions and I am not affiliated with or endorsing any one of these products or companies.

Health Service coughs up

Today I went here. No, not to see some sexy firemen – this is the new sleep centre for the Royal Brompton in London.

20130408-210122.jpg

The train assistance didn’t quite work out so well as one train didn’t have an accessible carriage. Then on the one home the accessible carriage had its doors jammed stuck so there was no access to that part. I sat by the doors.

20130408-210635.jpg

What happened in between the two journeys was brilliant. I can’t cough as my muscles are too weak. A machine exists – a cough assist – which help you cough and get rid of the gunk that sits in your throat. It can save you going into hospital or choking especially if you get a bug or chest infection. They are like gold dust so I didn’t think they’d give me one as they cost about 4K. I had a good assessment and actually came home with one! Amazing as I’ve told my docs I’ve been choking for years and never even got an assessment. I am very very happy!

The holy grail of BIPAP

A huge, painful, problem for anyone using a full face mask at night is nose sores. Pressure sores on the bridge of your nose are excruciatingly painful. In fact it’s the sort of pain where even a faint breeze can feel like a nail being banged into your nose.

Henceforth came the quest that every user begins – the search for the Holy Grail of masks.

20111012-101651.jpg

It’s hard to believe that such a soft piece of silicone from the edge of a cuff, barely touching your nose bridge, could cause a gaping hole! I still can’t get my head around it. Each breath of my vent gives the faintest of touches from the seal. A breath every 6 seconds though soon adds up I suppose.

New Look

Nothing to do with clothes – I refer, my friends, to what has become my new look – a whopping red sore that every eye is drawn to should they glimpse me face on. I’ve only had a few weeks in the last 7 months where I haven’t looked like I’ve been on the gin!

I’m going to share some of the things I’ve found that has helped (or not) as time goes on 🙂